5 Dec 2022

Cystic fibrosis patient on Trikafta drug funding

From Morning Report, 8:12 am on 5 December 2022

Pharmac has reached a provisional agreement to fund a cystic fibrosis drug which has been found to extend life expectancy by 27 years.

Cystic fibrosis is a terminal condition that affects about 540 people in New Zealand.

Ed Lee is a cystic fibrosis patient who has managed to self-fund the treatment, but has campaigned for Pharmac to fund Trikafta. 

He spoke to Corin Dann.