Pharmac has reached a provisional agreement to fund a cystic fibrosis drug which has been found to extend life expectancy by 27 years.
Cystic fibrosis is a terminal condition that affects about 540 people in New Zealand.
Ed Lee is a cystic fibrosis patient who has managed to self-fund the treatment, but has campaigned for Pharmac to fund Trikafta.
He spoke to Corin Dann.