Rare Disorders
Rare disorders aren't unusual enough to ignore
4 Mar 2024
One in 17 New Zealanders have what's termed as a rare disorder. March is the month to highlight their lives and struggles. Audio
Having a rare disorder isn't rare - but it is frustrating
24 Feb 2021
For those kiwis with rare disorders, it's a battle against the health system to get treatment. Audio
John Forman - NZ Rare Disorders Organisation
17 Jun 2015
John Forman is the founder and executive director of the Organisation for Rare Disorders, a not-for-profit group set up to help rare disease families through the health and disability system and to… Audio