The husband of a woman diagnosed with dementia at 58 years old, says people with young-onset are missing out on appropriate services.
Between 5,000 and 7,000 New Zealanders are estimated to have dementia diagnosed before the age of 65, but there is no dedicated residential care facility.
Paul Singh's wife was already in the severe dementia phase when she was diagnosed at 58, after being symptomatic for years.
He is involved in advocating for others in a similar situation.
Dr Singh says patients and their families experience social isolation, economic impacts and mental health struggles, but the system is hard to navigate and doesn't take into account the unique circumstances for those with young onset.
A five year government dementia strategy was endorsed by Cabinet in 2022, but he says it remains unimplemented and underfunded.
Health NZ is currently reviewing funding for the Aged Care sector.